Committees & Coalitions

The Leukemia & Lymphoma Society (LLS) develops its legislative priorities with the goal of improving the quality-of-life of blood cancer patients. In order to have the greatest impact on federal legislators while advancing this agenda, LLS has joined several influencial coalitions consisting of many cancer and health-related organizations. Below you will find a listing of these partners, as well as letters documenting the work being done on the federal level to advance cancer care.


Coalition Letters: Letters that The Leukemia & Lymphoma Society (LLS) has signed on to.

• Joint Letter asking Congress to Pass legislation that will limit the monthly out-of-pocket costs patients face for their prescriptions
• A formal joint letter on a request for a National Coverage Determination (NCD) for allogeneic hematopoietic cell transplantation (HCT) for myelodysplastic syndrome (MDS) in the Medicare population.
• Joint Letter from The Leukemia & Lymphoma Society and the Lance Armstrong Foundation regarding provisions in the Centers for Medicare and Medicaid Systems (CMS)
• Alliance for Childhood Cancer Support Letter for Full Funding of the Conquer Childhood Cancer Act
• CLC Identifies Key Elements of Health Care Reform 7.2009
• CLC Endorses Access to Cancer Clinical Trials Act S. 488
• CLC Endorses Access to Cancer Clinical Trials Act HR. 716
• One Voice Against Cancer (OVAC) Stimulus Package letter 2.09.2009
• OVAC Letter to Rep. Obey on Appropriations Urging to keep Cancer Research Funding a Priority in FY2010
• OVAC Economic Stimulus Package Letter to House Speaker Pelos
• OVAC Ad in Support of Importance of Continued Cancer Research Funding at NIH and NCI

Allied Organizations: LLS continually builds and creates working relationships with other organizations and groups in order to work togeter towards our common goals and interests.

• Cancer Leadership Council (CLC)
• One Voice Against Cancer (OVAC)
• The Coalition of National Cancer Cooperative Groups, Inc.
• Naitonal Coalition for Cancer Survivorship (NCCS)
• Friends of Cancer Research
• Independent Sector
• Research America
• Coalition for the Advancement of Medical Research
• National Coalition for Cancer Research (NCCR)
• Livestrong- Young Adult Alliance
• Alliance for Childhood Cancer

LLS Advocacay Advisory Committee:

• U.S. Rep. Vic Fazio (D-CA, ret.)
• U.S. Sen. Kay Bailey Hutchison (R-TX)
• U.S. Rep. Jerry Lewis (D-CA)
• U.S. Rep. Bob Livingston (R-LA, ret.)
• U.S. Rep. Marty Russo (D-IL, ret.)
• U.S. Rep. C.W. "Bill" Young (R-FL), chairman